Neurology charities and other organisations
 
Most of the organisations listed here are not currently in contact with GlosNA and therefore do not enjoy the full benefits of GlosNA's working relationship with the Gloucestershire CCG.

If you are a regional or local representative of a neurological charity and you would like your views (or those of your organisation) to be taken into account by GlosNA and ultimately by the Gloucestershire CCG, then we invite you to contact GlosNA.  You will always be welcome at GlosNA meetings; there is no charge and any commitment you make is entirely voluntary.
 

 All Neurological Conditions 

Gloucestershire Neurological Alliance

www.glosna.org.uk
info@glosna.org.uk

Brain and Spine Foundation
Information and support about all neurological conditions

0808 808 1000
helpline@brainandspine.org.uk
www.brainandspine.org.uk

BASIC
Brain and Spinal Injury Charity

0870 750 0000
enquiries@basiccharity.org.uk
www.basiccharity.org.uk

Contact a Family
The charity holds an index of specific conditions and rare disorders

0808 808 3555
info@cafamily.org.uk
www.cafamily.org.uk

NeuroSupport
Provides non-medical information and support to people with neurological conditions

0151 298 2999
info@neurosupport.org.uk
www.neurosupport.org.uk

Sue Ryder Care
Provides neurological care centres

0845 050 1953
info@suerydercare.org
www.suerydercare.org


 Specific Neurological Conditions 

Acoustic neuroma

British Acoustic Neuroma Association

0800 652 3143
admin@bana-uk.com
www.bana-uk.com

Aphasia

UK Connect

020 7367 0840
info@ukconnect.org
www.ukconnect.org

Ataxia

Ataxia UK

0845 644 0606
helpline@ataxia.org.uk
www.ataxia.org.uk

 

Ataxia-telangiectasia Society

01582 760733
info@atsociety.org.uk
www.atsociety.org.uk

Brain tumour

Brain Tumour Charity &
Brian Tumour Support

0808 800 0004
support@thebraintumourcharity.org
www.thebraintumourcharity.org

BSE

Human BSE Foundation

0191 389 4157
info@hbsef.org

Cerebral Palsy

Scope

0808 800 3333
helpline@scope.org.uk
www.scope.org.uk

Charcot–Marie-Tooth Disease

CMT

0800 652 6316
enquiries@cmtuk.org.uk
www.cmt.org.uk

Dementia

Alzheimer’s Society

0300 222 1122
enquiries@alzheimers.org.uk
www.alzheimers.org.uk

 

Dementia UK

0800 888 6678
direct@dementiauk.org
www.dementiauk.org

Dyspraxia

DANDA
Developmental Adult Neuro Diversity Association

info@danda.org.uk
www.danda.org.uk

Dystonia

The Dystonia Society

0845 458 6322
info@dystonia.org.uk
http://www.dystonia.org.uk

 

ADDER Action for Dystonia Diagnosis, Education and Research

0191 477 7700
info@actionfordystonia.co.uk
www.actionfordystonia.co.uk

Encephalitis

Encephalitis Society

01653 692583
support@encephalitis.info
www.encephalitis.info

Epilepsy

Epilepsy Action

0808 800 5050
helpline@epilepsy.org.uk
www.epilepsy.org.uk

 

The National Society for Epilepsy

01494 601400
www.epilepsynse.org.uk

Gullain Barré Syndrome

Gullain Barré Syndrome Support Group

0800 374803
admin@gbs.org.uk
www.gbs.org.uk

Head and Brain Injury

Headway

0808 800 2244
helpline@headway.org.uk
www.headway.org.uk

 

Headway Gloucestershire

01452 312713
www.headwaygloucestershire.org.uk admin@headwaygloucestershire.org.uk

 

Child Brain Injury Trust

0303 303 2248
helpline@cbituk.org
www.childbraininjurytrust.org.uk

Headache and Migraine

Migraine Trust

020 7631 6970
info@migrainetrust.org
www.migrainetrust.org

 

Migraine Action

0116 275 8317
www.migraine.org.uk

Hemiplegia

Hemihelp

0845 123 2372
support@hemihelp.org.uk
www.hemihelp.org.uk

Huntington's disease

Huntington’s Disease Association

0151 298 3298
info@hda.org.uk
www.hda.org.uk

Hydro­cephalus

Shine

01733 555988
info@shinecharity.org.uk
www.shinecharity.org.uk

Meningitis

Meningitis Now

0808 80 10 388 (help line)
01453 768000 (switchboard)
helpline@meningitisnow.org
www.meningitisnow.org

Myalgic encephalo­myelitis (ME)

ME Association

0844 576 5326
meconnect@meassociation.org.uk
www.meassociation.org.uk

Motor Neurone Disease

Motor Neurone Disease (MND) Association

03457 626262
mndconnect@mndassociation.org
www.mndassociation.org

Multiple Sclerosis

Multiple Sclerosis Society

0808 800 8000
helpline@mssociety.org.uk
www.mssociety.org.uk

 

Multiple Sclerosis Trust

0800 032 38 39
info@mstrust.org.uk
www.mstrust.org.uk

 

MS Therapy Centre

01452 419246
info@glosmsinfo.org.uk
www.glosmsinfo.org.uk

Multiple system atrophy

Multiple System Atrophy Trust

0333 323 4591
support@msatrust.org.uk
www.msatrust.org.uk

Muscular dystrophy

Muscular Dystrophy UK

0800 652 6352
info@musculardystrophyuk.org
www.musculardystrophyuk.org

Myasthenia gravis

Myaware

01332 290219
info@myaware.org
www.myaware.org

Narcolepsy

Narcolepsy Association UK (UKAM)

0845 450 0394
info@narcolepsy.org.uk
www.narcolepsy.org.uk

Neuro-fibromatosis

Neurofibromatosis Association

020 8439 1234
info@nfauk.org
www.nfauk.org

Parkinson’s disease

Parkinson’s UK

0808 800 0303
hello@parkinsons.org.uk
www.parkinsons.org.uk

Polio

British Polio Fellowship

0800 043 1935
info@britishpolio.org.uk
www.britishpolio.org.uk

 

Polio Survivors Network

01522 888601
info@poliosurvivorsnetwork.org.uk
www.poliosurvivorsnetwork.org.uk

Progressive supranuclear palsy

The Progressive Supranuclear Palsy Association

0300 0110 122
psp@pspassociation.org.uk
www.pspassociation.org.uk

Rett syndrome

Rett UK

01582 798911
info@rettuk.org
www.rettuk.org

Spina bifida

Shine

01733 555988
info@shinecharity.org.uk
www.shinecharity.org.uk

Spinal injury

Spinal Injuries Association

0800 980 0501
sia@spinal.co.uk
www.spinal.co.uk

Syringomyelia

British Syringomyelia & Chiari Society

01788 537676
info@britishsyringomyelia-chiarisociety. org

www.britishsyringomyelia-chiarisociety.org

Stroke

The Stroke Association

0303 303 3100
info@stroke.org.uk
www.stroke.org.uk

 

Different Strokes (for younger stroke survivors)

0845 130 7172
webcontact@differentstrokes.co.uk
www.differentstrokes.co.uk

Tourette Syndrome

Tourettes Action

0300 777 8427
help@tourettes-action.org.uk
www.tourettes-action.org.uk

Transverse Myelitis

Transverse Myelitis Society

020 8568 0350
lewgray@blueyonder.co.uk
www.myelitis.org.uk

Tremor

National Tremor Foundation

01708 386399
tremorfoundation@aol.com
www.tremor.org.uk

Tuberous sclerosis

Tuberous Sclerosis Association

0121 445 6970
admin@tuberous-sclerosis.org
www.tuberous-sclerosis.org


 General Disability Issues 

Scope – About Disability

0808 800 3333
helpline@scope.org.uk
www.scope.org.uk

Equality and Human Rights Commission

0808 800 0082
complaints@equalityhumanrights.com
www.equalityhumanrights.com

Disabled Living Foundation

0300 999 0004
helpline@dlf.org.uk
www.dlf.org.uk

Disability Rights UK
(Successor of RADAR, Royal Association for Disability and Rehabilitation)

020 7250 3222
enquiries@disabilityrightsuk.org
www.disabilityrightsuk.org


 Carers 

Carers Gloucestershire

0300 111 9000
carersgloucestershire.org.uk/

Carers UK

0808 808 7777
info@carersuk.org
www.carersuk.org

Carers Trust
(merged with Crossroads Association)

0844 800 4361
info@carers.org
www.carers.org.uk


 
© Gloucestershire Neurological Alliance 2014, 2015, 2016