GlosNA's Partner Charities
 
The Motor Neurone Disease Association
 
  Motor neurone disease (MND) is any of a group of diseases that attack motor neurones, the cells that control voluntary muscle activity including speaking, walking, swallowing and general movement of the body.  They are generally progressive in nature and cause severe disability.  There is no known cure.  There are about 42,000 people with MND in the UK.

The Motor Neurone Disease Association (MNDA) is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.

“The Motor Neurone Disease Association places great value on partnership working, as it acknowledges that improvments in neurological services are mainly achieved by working closely with other neurological charities and key partners. 

“GlosNA has been instrumental in building stronger links with Gloucestershire's commissioners of services.

“I urge other neurological charities to work with us in the county to achieve a better future for people with neurological conditions.”

Hilary Fairfield,
Regional Care Development Adviser
(West of England)
 
 

The Multiple Sclerosis Society

Multiple sclerosis (MS) is a disabling inflammatory disease in which the insulation surrounding nerve cells and fibres in the brain and spinal cord are damaged.  This damage disrupts the ability of parts of the nervous system to communicate, resulting in physical, mental and and occasionally psychiatric problems.  There is no known cure.  More than 100,000 people in the UK have MS.

The MS Society is a charity fighting to improve treatment and care and to help people with MS take control of their lives.  It also funds about 70 research projects to the tune of 15 million pounds to help beat MS for good.

 
 

MS Therapy Centres

The Gloucestershire MS Therapy Centre is a member of the MS National Therapy Centres (MSNTC), providing a range of therapies that can help alleviate some of the symptoms of MS.  The Gloucester Centre provides hyperbaric oxygen, physiotherapy, massage and several other therapies.

 
 

Headway - The Brain Injury Association

There are estimated to be at least 1 million people in the UK living with the effects of acquired brain injury (ABI).  There are many causes of ABI, including injury from road traffic collisions, falls and assaults; stroke and other vascular disorders; tumours and abcesses; diseases and metabolic disorders, and poisoning.

Headway is a charity which seeks to promote understanding of all aspects of brain injury and to provide information, support and services to people with a brain injury, their families and carers.

 
 

Parkinson's UK

Parkinson's is a progressive condition resulting from a failure of cells in the brain which produce dopamine.  This results in several debilitating problems, including shaking, rigidity, slowness of movement and difficulty with walking and gait.  Later, thinking and behavioral problems may arise, and dementia commonly occurs in the advanced stages of the disease. Other symptoms include depression and sensory, sleep and emotional problems.  Around 127,000 people in the UK are believed to have Parkinson's. 

Parkinson's UK is a support and research charity which, for more than 40 years, has been working to find a cure and improve life for everyone affected by Parkinson's.

 
 

Epilepsy Society

Epilepsy is a group of long-term neurological disorders characterized by seizures, episodes that can vary from brief and nearly undetectable to long periods of vigorous shaking.  Seizures tend to recur and have no immediate underlying cause; in most cases the cause is unknown.  Epileptic seizures are the result of excessive and abnormal cortical nerve cell activity in the brain.

Epilepsy Society is a charity and is the UK’s leading provider of epilepsy services.  Through cutting edge research, awareness campaigns, information resources and expert care, the society works for everyone affected by epilepsy in the UK.

 
 

PSP Association

Progressive Supranuclear Palsy (PSP) is a degenerative disease involving the gradual deterioration and death of specific volumes of the brain.  There are betwee 4,000 and 10,000 people in the UK affected by PSP.  It affects balance and sight at first, then swallowing, sleep, mood and cognition.  Average survival is 7 years, with wide variation.

The PSP Association is a charity which is dedicated to the support of people with Progressive Supranuclear Palsy (PSP) and the related disease Cortico Basal Degeneration (CBD).  It also funds research into the diagnosis and treatment of PSP and related diseases.

 
 

CHARITIES NOT YET REPRESENTED

There are many more neurological conditions that have a deleterious effect on the quality of life of the sufferer.  Most of them are represented by charities, and GlosNA would like to hear from representatives of those charities in order to ensure that their views (and those of their members) are included in our submissions to the NHS and the local council.

If you are a representative of a neurological charity and you would like your views to be heard where it matters, please contact GlosNA - there are no costs and your members could benefit.  Click this link to send an email to us.

 
© Gloucestershire Neurological Alliance 2014